Thank you to all of you who have been involved in the research. Your participation in the research is invaluable.

We would like to keep you informed about what's happening with the research. Check the updates or commonly asked questions on this page and feel free to contact us if you any questions or ideas.

If you have any further enquiries about the study, please feel free to contact the project at (email tbd) or alternatively via phone on (phone numbers tbd).

Confidentiality

It is extremely important for you to be aware that any information or details you provide to us will be treated with the absolute strictest of confidence.
 

  • All information that you provide will be de-identified - this means that your name or any recognisable feature about you will be separated from the information.
  • The questionnaires that you will complete will contain only your unique study code. Your name will not appear on any of the data at all.
  • All your personal contact details that we collect for the purpose of following you up for further research, will be stored separately within QADREC. Only authorised QADREC researchers working on this project will have access to your contact details.
  • Files will only be kept for 7 years, after which they will be shredded and deleted.
  • Information and data gathered from this study will be used to write scientific peer-reviewed publications, conference proceedings, and technical reports (hyperlink to publication page) However, your information will not be provided in any publication that will identify you or any other individual in any way. Any information presented will be looking at the population data, and not individual information.
  • It is your absolute right to withdraw from the study at any time, without consequence, and you may request for your information to be destroyed.

Please remember that all responses are treated in the strictest confidence and will not be available to any person outside the project team. Your name and contact details will not be stored with your responses – they will be stored on secure and encrypted UQ servers.
 
You may see on some of the information the Legal Disclaimer, which states the following:

Any information that is obtained in connection with this study will be disclosed only with your permission, except as a required by law. The confidentiality of information collected in this research is protected by the Commonwealth Privacy Act 1988. This legislation covers personal information collected by any organisation and treats breaches of privacy as a criminal offence. The Privacy Act does allow for the disclosure of personal information in exceptional circumstances.

‘Exceptional circumstances’ may include instances where we have knowledge of an intention to harm yourself or others, or if we are subpoenaed in relation to an alleged serious offence.

Legal disclaimer

Any information that is obtained in connection with this study will be disclosed only with your permission, except as a required by law. The confidentiality of information collected in this research is protected by the Commonwealth Privacy Act 1988. This legislation covers personal information collected by any organisation and treats breaches of privacy as an offence. The Privacy Act does allow for the disclosure of personal information in exceptional circumstances.