Supporting our Carers Study (SOCS): Assessing supportive care needs of Indigenous cancer survivors’ caregivers
The Supporting our Carers project seeks to understand the supportive care needs of caregivers of Aboriginal and Torres Strait Islander people with cancer, building on our previous work in identifying Indigenous cancer survivors’ unmet support needs.
We are undertaking a three-phase project to produce an evidence-based and validated tool to measure carers’ support needs.
Currently in its final phase, Supporting Our Carers is being conducted in collaboration with cancer services at Hospital and Health Services across Queensland, and our investigators and collaborators - listed below.
Collaborators:
Menzies School of Research | The University of New South Wales | Perron Institute at the University of Western Australia | Curtin University | the University of Sydney
Funded By:
Australian Research Council Discovery Indigenous Grant.
Publications:
Masa, Adam J., Martinez-Bredeck, Helena, Butler, Tamara L., Anderson, Kate, Girgis, Afaf, Aoun, Samar M., Cunningham, Joan, Wakefield, Claire E., Shahid, Shaouli, Smith, Allan B., Garvey, Gail. (2020)
The experiences of caregivers of Indigenous cancer survivors in Australia, Canada, New Zealand, and the United States: a systematic review. J Psychosoc Oncol Res Pract. 2(4):p e040, December 2020. | DOI: 10.1097/OR9.0000000000000040
Bell, L., Anderson, K., Girgis, A., Aoun, S., Cunningham, J., Wakefield, C. E., Shahid, S., Smith, A. B., Diaz, A., Lindsay, D., Masa, A., & Garvey, G. (2021).
"We Have to Be Strong Ourselves": Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer. Int J Environ Res Public Health, 18(14), 7281. https://doi.org/10.3390/ijerph18147281
ARTWORK:
Created by Chaboo Designs
This artwork represents the support our carers need, whiclet caring for our Aboriginal and Torres Strait islander Cancer patients.
The outer dots represent community.
The orange circle signified the coming together of support workers, carers and patient.
The Support Workers, carers and patiets are represented in the upside down "U" shapes and white dot.
The small orange dots and the linke depict the connectsion and communication between all parties.